Oral self-examination
for individuals with FA

Early detection of oral changes in FA

Power 2U

Why is regular self-examination of the mouth important?

Individuals with FA often have visible spots in their mouths that come and go and are nothing to worry about. Only in rare cases, these spots (called lesions) are premalignant or already cancerous.
Consistent and thorough observation can lead to early detection of important changes that can be monitored and/or treated effectively.

Therefore, in addition to regular visits at the dentist and ENT (Ear, Nose and Throat specialist), monthly self-examination or examination by a family member with documentation is recommended. Self-examinations do not replace a regular visit with your treating physician. Nevertheless, it is very helpful to examine the oral cavity regularly yourself and look for visible spots. Be proactive and take the advantage of early detection of changes in your mouth in your hands!

Here’s how to proceed:
1. Watch the intro video
2. Download the FAexam
3. Check out and watch video how the App FAexam works 

4. Get started and reach out to us if you have any questions

Preventive Screenings

Learn here which screenings should be performed REGULARLY for adults!

(Suspicion of) Cancer - Do this

The doctor has seen „something“ and wants to take a tissue sample?

FA Wiki - know more about FA

Do you want to have more background information about FA?

Do you need support?

Christine Krieg
  • Phone +49 160 977 14400
  • Email christine.krieg@fanconi.de
  • Web Deutsche FA-Hilfe
Dr. med. Eunike Velleuer-Carlberg
  • Phone +49 2151-32 2338
  • Email eunike.velleuer@helios-gesundheit.de
  • Web Helios Klinikum Krefeld

Spender sind MUTMACHER!

Unterstützen Sie unsere Arbeit,
machen Sie Mut und helfen Sie dabei, die Lebensqualität dieser „Seltenen“ zu erhöhen!