- Start
- FA-INFO-KIT
- Infopool
Ansprechpartner & Unterstützung
Die DFA-Hilfe an Ihrer Seite
- Oral Screening
- Kontakt
The Fanconi anemia lexicon (FA-Wiki)
FA 101
FA-Basics / The What, Why & How
In this foundational chapter, you’ll learn what Fanconi Anemia is, why individuals with FA have an increased risk of developing tumors, and what positive steps you can take in your health journey.
Click on the yellow circles in the grafic, these will lead you to the following subchapters:
- DNA repair & FA issues
- How does oral cancer develop
- Cancer in FA
- Influencing factors
Click on the yellow circles to read more!
Examination
Instructions for examination & documentation - simply do it
In this chapter, you’ll learn why and how to conduct a self-mouth inspection and how you should document it. You can see examples of what early changes in the oral mucosa look like – so you’ll learn all the practical aspects of an oral self-examination.
Click on the purple circles in the grafic, these will lead you to the following subchapters:
- Why you should do it
- Instructions for examination
- Instructions for documentation
- Examples of visible lesions
- Risk of Data loss – avoid!
- Download all instructions
The video for mouth-self examination
You want to quickly find out what it’s about? Then look HERE.
Click on the purple circles to read more!
Changes
What to do when you see changes & spots / Keeping your cool
Here, it’s all about when you come across a suspicious spot during a self-mouth examination. These are very common among people with FA and are mostly harmless. However, they shouldn’t be ignored, nor should you panic.
Find out in this chapter what you should do if you find changes in your mouth or on your tongue.
Click on the green circles in the grafic, these will lead you to the following subchapters:
- Keeping your cool
- Appointment with the doctor
- Add-on Screening & Brush Biopsy
- Contacts
Click on the green circles to read more!
Research
Help yourself (and others)
There are many important research projects worldwide addressing various questions and issues that FA sufferers may encounter. In this section of the lexicon, you’ll find contacts for research projects.
Feel free to reach out to us directly if you have any questions.
Click on the yellow circles in the grafic, these will lead you to the following subchapters:
- Overview of projects
- FA patient registry
- FA cancer
Click on the yellow circles to read more!
Support
You are not alone
Very important! If you have questions or even start to feel panic setting in, reach out to us. We’re here to help you!
Click on the blue circles in the grafic, these will lead you to the following subchapters:
- Project team
- Fa adults council
- Support services
You need help?
Contact us HERE.
Click on the blue circles to read more!
The Intro-Video
The Intro-Video
Watch the video to learn WHY and HOW an oral self-examination should be done.
Get yourself the App FAexam
Get yourself the App FAexam
The app that helps you conduct a self-mouth examination and easily document it!
