The Fanconi anemia lexicon (FA-Wiki)

FA 101

FA-Basics / The What, Why & How

In this foundational chapter, you’ll learn what Fanconi Anemia is, why individuals with FA have an increased risk of developing tumors, and what positive steps you can take in your health journey.

Examination

Instructions for examination & documentation - simply do it

In this chapter, you’ll learn why and how to conduct a self-mouth inspection and how you should document it. You can see examples of what early changes in the oral mucosa look like – so you’ll learn all the practical aspects of an oral self-examination.

The video for mouth-self examination
You want to quickly find out what it’s about? Then look HERE.

Changes

What to do when you see changes & spots / Keeping your cool

Here, it’s all about when you come across a suspicious spot during a self-mouth examination. These are very common among people with FA and are mostly harmless. However, they shouldn’t be ignored, nor should you panic.

Find out in this chapter what you should do if you find changes in your mouth or on your tongue.

Research

Help yourself (and others)

There are many important research projects worldwide addressing various questions and issues that FA sufferers may encounter. In this section of the lexicon, you’ll find contacts for research projects.

Feel free to reach out to us directly if you have any questions.

Support

You are not alone

Very important! If you have questions or even start to feel panic setting in, reach out to us. We’re here to help you!

You need help?
Contact us HERE.

Click on the blue circles to read more!

Spender sind MUTMACHER!

Unterstützen Sie unsere Arbeit,
machen Sie Mut und helfen Sie dabei, die Lebensqualität dieser „Seltenen“ zu erhöhen!